"Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Susan,
I think I fell in the middle of what most people go through here. I did not get a PEG. I had minor skin burn (like a sunburn) and only used over the counter stuff (Pure Aloe). I lost my taste but have since regained 95% of it. I never had the mucus issues and they did a great job preserving my salivary glands. I get dry mouth, but not real bad or for long periods. I eat with water around but can swallow almost everything.
I did get some very painful ulcers on the tongue and in my throat at the very end of treatment. I also suffered from a bout of depression about 1 month out of treatment (not like me at all).
So I ran into some of the issues that you can run into but not nearly as many as others. All in all it was a real pain in the ass but I was able to get back on my feet and back to a normal life fairly quickly.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
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