Dear Friends,I haven't posted for quite a while because things have been very difficult at our house.

Now that Roy is 2 months post treatment, I'm wondering if it is normal for him to still have increasing pain in his tongue...so much so that he won't even try to eat through his mouth. (He takes 10mg Oxy every 4 hrs) He also has great trouble swallowing, and relies complete on the PEG for all food and water. At times, when he begins a feeding, he immediately throws up. Then he will take anti-nausea meds, and they totally knock him out for a day or so w/o food or water.

He sleeps most of the time now, and seems to be losing his drive to pursue getting better. I'm scared and don't know how to help him. Is this all just part of the process, or is there something really wrong here?

Please help,

Laurie