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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Laurie, I am sorry to hear Roy isnt doing so well right now. At the 2 month point he should have 'climbed out of the tunnel'. Of course, everyone is different. Most take 2 or 3 weeks and start to slowly recover. The process is long and hard, most of us take 2 steps forward and 1 step back. Sometimes its 2 steps backwards to 1 step forward. It can take a year or 2 before he is back to almost normal. Fatigue can sick around for a very very long time.
Has his pain meds been decreased? Did he go off the fentanyl patch (not sure if he had it)? Alot of us have taken oxycodone for breakthru pain and been on the patch. Is there anything you can think of that has changed since he finished treatments?
Pain is unfortunately normal. Some lucky few dont have it too bad while others suffer for a very long time. Increased pain should be something you would discuss with his doctor. I would call and have him seen sometime next week.
Nasuea meds didnt knock me out at all. Maybe try giving him only 1/2 a dose of that. Encourage him to swallow at least water daily. Bigger problems will happen if he loses that ability. He will then need to relearn to swallow which can be a long process. It sounds like he may be malnourished and dehydrated if he isnt able to get enough in. How are his feedings done? Does he have a pump? If not ask for one. Slow down the feedings and add some water to it and his nasuea will decrease. Make sure he is sitting up or propped up to get the feedings. Remember he needs 2500+ calories per day and minimum 48oz water daily or he will feel awful!!!! Healing takes alot out of a person and burns up calories very quickly.
Many patient and even their caregivers take antidepressants. It might be something he needs to help him get thru this.
Best of luck with everything. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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