Would someone please explain to me why it seems almost univeral that these surgeons put the PEGs in and there is no follow up to see that the caregiver and patient understand how to use them.
I had to beg, borrow, and steal to get home health out to help us when Bill's PEG was first placed...jeez..unneeded stress during a very stressful time. The MO's nurses finally got involved, made phone calls, and got the ball rolling as we had nothing..no supplies, no training...it was just me and a pretty sick hubby and this PEG tube that at the time seemed an alien object connected to my spouse. Of course, we learned that it was a pretty simple process, but at first, we needed help and support.
This was before I put my "Nurse from Hell" hat on...I know better now how to advocate for my patient.