Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | My RO would not start treatment without the PEG tube. I am so thankful I had it. I had a rougher time than most with the stupid treatments. Had to take a break after week three, because my throat was so bad it had swollen almost completely shut and could barely breathe. Then I was in the hospital for a few days. Not everyone has the side-effects, I think I had a rougher time during treatment, but healed up rather quickly after treatment. I quit using my PEg just 2 months after treatment. I would do what you want to do or what you are comfortable with.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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