 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Just listen to the ones saying eat while you can. After 3 years I still don't get hungry or have the abilty to have any taste at all except for the 1st bite. It;s strange to never feel hinger pangs and have the desire to eat. It's a force yourself that you will have to do and usually you will want to quit after a couple of bites. Good luck and fight, fight , fight this thing.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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