"OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Hi Karen, found the name of the scheme we were under for assistance with Steve's supplies. It's called Program of Appliances for Disabled People (PADP). It's a government funded scheme to aid with such things as Enteral Nutrition Consumables (ie 2cal etc). These guys really helped to drop the cost of all of this for us and delivered it to our door. Your dietician should be able to get the ball rolling for you in regards to this. Ours filled out paperwork and got this all organised for us. All I had to do was sign the paperwork pay the initial $100 set up. After that I would just ring and order, then pay a reduced amount for what we needed. Made a huge difference. Hope this helps.
Also we weren't offered anything other than 2cal and sustagen. We pick up sometimes 6 cans at a time of sustagen for free from our dietician which you guys should also be entitled to. 2cal worked extremely well for Steve's weight gain while he was on it. Not sure what others are available here in Australia.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
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