Hi Karen

If it helps any Steve hated the 2cal also. Because of the problems he had with his peg leaking everytime he drank the 2cal it came out of the hole in his stomach. So in his mind the smell of the 2cal as he drank it smelt like what was coming out of his stomach. So getting him to drink it after all of this was impossible. We also had issue's getting him to agree to the pump as well. In the end while he was in hospital we had a discussion with the dietician and agreed to take it home on a trial basis. At home it still was a no go until after Steve had done a course of cisplatin. Then he didn't care. He felt so sick and just wanted to sleep so I was able to convince him that we give the pump a try so he could sleep and neither of us had to worry about his hydration or nutrition. Worked a treat and we used it every day after that. Because it was going straight into his stomach (below where the leak was) he couldn't smell it or taste it. So 2cal became a lot easier after that. But still to this day he would not drink it. Hates the stuff.

Steve had a checkup yesterday and I'm glad to say all going well. But like you we had discussed things before hand. Things I was concerned about. But when I brought them up in front of the doctor I was suddenly over reacting (not specifically said but just the words to the doctor from Steve and the body language said it all). So so frustrating. But I said my peace and at least I know I've done the right thing. Not much more we can do other than raise our concerns and hope that the doctor's can see through the I'm Ok's or the I don't like drugs. Normally they do.

Great work on the research by the way. Take care.
Wendy