Thank you everyone,
Our monthly meeting with all the team was last Tuesday and I asked about all of the things that others have highlighted for me. Alex, not unexpectedly, decided that his PEG wasn't really giving him a hard time and that scanning would not be necessary. This happens with pain as well - when it is he and I, he lists his symptoms and we discuss our options. If none of the possible solutions work, we agree to discuss it with doctor. The second I bring it up, Alex minimises the problem ("I don't like taking drugs doc" or "not too much pain doc" grrr). The dietician knows what he is like and immediately looked to me to see if I agreed. A shrug from me and Louise (bless her) decided to drop it until the next time.

Here is what I found out regarding the feeding.
Victorian hospitals do things differently and hospitals have a budget for such things (this happens in my area of specialty with HIV patients too)
Two cal is on the "very cheap" list so we can get it for a very small amount of money through the HENS programme which is an extension of what used to be called the PADP
Nutrison is not on this list in NSW (though might be in other states) so we have two choices - go back to TwoCal which Alex hates or continue with Nutrison and go broke. At the moment we are going broke as Alex refuses to entertain the thought of TwoCal.
We have discovered that TwoCAl can be run with a pump (thanks Karen and Wendy) which would slow the feeding down and may be more tolerable for Alex. I need to get him used to the idea but Louise has a spare pump waiting in the wings if I manage to convince him to give it another go.
I need to start lobbying for Nutrison to be put on the enteral feeding list by the federal or state government or Area Health Board (not sure but am networking and doing the research now) to get it subsidised for ALL patients regardless of which state or hospital they are being treated in.

DebandJim mentioned Jevity so I looked it up it but does not have the calories we need in the small volumes Alex will tolerate. Alex is not insured so none of this can be claimed either, and I suspect Jevity is another product that is not on THE LIST.

Karen
PS for the information of our US friends, the Australian Health system is similar to the UK and every Australian resident is entitled to free healthcare in hospitals and most medicines are subsidised by the government who charge a copayment of $5.60 per script for pensioners /unemployed/disabled and $33 for those of us with jobs. This means that health insurance is not offered as part of the work package and it is not uncommon for Australians to be uninsured. Those who are uninsured, need to buy medicines that are on THE LIST (my terminology not the government's)