Anita,

This feud is going to continue as long as new patients keep showing up at this site. There are those of us that chose the no PEG option and it did work out for us. I still remember when it was highly recommended that I get the PEG by my RO�s head nurse. She went through the whole routine with me on the problems I could face.

It was obvious I was going to man up and go without one. The male nurse who was there the whole time came to me after and said, �if I was in your shoes I would probably not get the tube either BUT that would be the wrong thing to do�. In other words the guy was siding with me on the macho side, but had to give a nod to the RO and the other nurse.

The thing I hung my hat on was the fact that they could insert the tube at a later date (although by that time you have encountered some problem that makes things harder to deal with). It was a control issue with me. I could control that aspect of my treatment and hated the idea of the tube.

You will see me advocate on this site for new patients to go ahead and get the PEG. If I had it to do all over again (your going to hate me for this) I�d go without it.


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR