| Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Beth, Boy, it sounds like you have had a very difficult time with this surgery. Where are you being treated that you are receiving such poor care? Most of us try to go to one of the Comprehensive Cancer Centers where they see thousands of cases like ours. Here is the list of centers from the resource section of this forum: http://oralcancerfoundation.org/resources/index.htm#centersYou might want to go to one of them for your radiation. How is your right arm? Can you still raise it up over your head? Do you have any pain? If so, you should be receiving Physical Therapy. Ask for a script and a referal to someone who has experience with people who have had neck disecctions. Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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had surgery, now waiting to start radiation
| bethers0808 | 05-13-2010 03:51 AM |
Re: had surgery, now waiting to start radiation
| Brian Hill | 05-13-2010 06:04 AM |
Re: had surgery, now waiting to start radiation
| davidcpa | 05-13-2010 12:32 PM |
Re: had surgery, now waiting to start radiation
| Charm2017 | 05-13-2010 01:27 PM |
Re: had surgery, now waiting to start radiation
| Jim and Deb | 05-13-2010 02:45 PM |
Re: had surgery, now waiting to start radiation
| Pandora99 | 05-13-2010 05:21 PM |
Re: had surgery, now waiting to start radiation
| Eileen | 05-13-2010 05:22 PM |
Re: had surgery, now waiting to start radiation
| slim | 05-13-2010 05:42 PM |
Re: had surgery, now waiting to start radiation
| bethers0808 | 05-13-2010 11:05 PM |
Re: had surgery, now waiting to start radiation
| EzJim | 05-14-2010 01:06 AM |
Re: had surgery, now waiting to start radiation
| Gabe | 05-14-2010 01:24 AM |
Re: had surgery, now waiting to start radiation
| Lostpassword | 05-14-2010 01:38 AM |
Re: had surgery, now waiting to start radiation
| beeboppin5 | 05-14-2010 05:41 PM |
Re: had surgery, now waiting to start radiation
| ESikon | 05-14-2010 08:23 PM |
Re: had surgery, now waiting to start radiation
| ChristineB | 05-15-2010 04:30 AM |
Re: had surgery, now waiting to start radiation
| Ashley090186 | 05-15-2010 05:46 PM |
Re: had surgery, now waiting to start radiation
| David2 | 05-15-2010 05:54 PM |
Re: had surgery, now waiting to start radiation
| Ashley090186 | 05-15-2010 06:15 PM |
Re: had surgery, now waiting to start radiation
| SusanW | 05-16-2010 03:30 AM |
Re: had surgery, now waiting to start radiation
| bethers0808 | 05-16-2010 07:26 AM |
Re: had surgery, now waiting to start radiation
| Charm2017 | 05-16-2010 03:17 PM |
Re: had surgery, now waiting to start radiation
| David2 | 05-17-2010 07:29 PM |
Re: had surgery, now waiting to start radiation
| JIM BEERS | 06-08-2010 12:46 PM |
Re: had surgery, now waiting to start radiation
| davidcpa | 06-08-2010 01:22 PM | |
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