| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Having had the same surgeries, I know that the majority of posters here will never truly understand just how hard you have it. I know I thought I did the first time around, but it wasn't until after I was left with an unresponsive tongue made of wrist skin, a petrified neck and left arm weakness that I realized I had had no idea of just how bad this all feels. For what it is worth, the taste did come back almost fully on one side of my tongue around a year after surgery. Not much comfort to me as I can't swallow so have to spit out the teeny tiny portion I taste then spend half hour trying to get it out of my mouth and off my teeth. But if you can eat, you will probably be able to enjoy taste again with what's left of your tongue. Glad you are starting the anti-depressants and hope they work for you. Take a look at our coping with anger/fear forum and the thread: "don't you just hate it" for some comic relief. I'd be surprised if you don't recognize some of the complaints. As for being a realist, I always agreed with Lily Tomlin [quote]Reality is a crutch for people who can't cope with drugs.[/quote]and Jane Wagner [quote]Reality is the leading cause of stress amongst those in touch with it.[/quote] Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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had surgery, now waiting to start radiation
| bethers0808 | 05-13-2010 03:51 AM |
Re: had surgery, now waiting to start radiation
| Brian Hill | 05-13-2010 06:04 AM |
Re: had surgery, now waiting to start radiation
| davidcpa | 05-13-2010 12:32 PM |
Re: had surgery, now waiting to start radiation
| Charm2017 | 05-13-2010 01:27 PM |
Re: had surgery, now waiting to start radiation
| Jim and Deb | 05-13-2010 02:45 PM |
Re: had surgery, now waiting to start radiation
| Pandora99 | 05-13-2010 05:21 PM |
Re: had surgery, now waiting to start radiation
| Eileen | 05-13-2010 05:22 PM |
Re: had surgery, now waiting to start radiation
| slim | 05-13-2010 05:42 PM |
Re: had surgery, now waiting to start radiation
| bethers0808 | 05-13-2010 11:05 PM |
Re: had surgery, now waiting to start radiation
| EzJim | 05-14-2010 01:06 AM |
Re: had surgery, now waiting to start radiation
| Gabe | 05-14-2010 01:24 AM |
Re: had surgery, now waiting to start radiation
| Lostpassword | 05-14-2010 01:38 AM |
Re: had surgery, now waiting to start radiation
| beeboppin5 | 05-14-2010 05:41 PM |
Re: had surgery, now waiting to start radiation
| ESikon | 05-14-2010 08:23 PM |
Re: had surgery, now waiting to start radiation
| ChristineB | 05-15-2010 04:30 AM |
Re: had surgery, now waiting to start radiation
| Ashley090186 | 05-15-2010 05:46 PM |
Re: had surgery, now waiting to start radiation
| David2 | 05-15-2010 05:54 PM |
Re: had surgery, now waiting to start radiation
| Ashley090186 | 05-15-2010 06:15 PM |
Re: had surgery, now waiting to start radiation
| SusanW | 05-16-2010 03:30 AM |
Re: had surgery, now waiting to start radiation
| bethers0808 | 05-16-2010 07:26 AM |
Re: had surgery, now waiting to start radiation
| Charm2017 | 05-16-2010 03:17 PM |
Re: had surgery, now waiting to start radiation
| David2 | 05-17-2010 07:29 PM |
Re: had surgery, now waiting to start radiation
| JIM BEERS | 06-08-2010 12:46 PM |
Re: had surgery, now waiting to start radiation
| davidcpa | 06-08-2010 01:22 PM | |
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