| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | JD
Everybody's experience is different but to give you some hope, the radiation (40 treatments) the first time affected my swallowing but not enough that I needed a PEG tube. If you are swallowing and eating right now after the surgery you described, I'd be surprised if the subsequent radiation required you to get a PEG. I had the tongue surgery and the neck dissection and jaw split open etc when the cancer came back and then I also had even more radiation and chemo. The second round of radiation did not cause additional scarring on my tongue or limit it's mobility any more than it was. I'm on a lifetime feeding tube now but I lost the ability to swallow and eat from the surgery. I was already on a G-tube (insider cancer technicality: my feeding tube is never inserted percutaneously so it can't be a PEG) right after the surgery due to how much of the base of the tongue they took out and even the forearm flap reconstruction only lets me talk not eat. I agree with the posters who suggest radiation to mop it up. Trust me you do NOT want the cancer to come back. Heck, I even went for more radiation after having the "maximum" already. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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Hello, lurked for a while, came in from the cold
| jdcree | 05-11-2010 08:35 PM |
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| davidcpa | 05-13-2010 12:08 PM | |
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