Don , I find this post highly interesting. This area would be hard pressed to have a support group unless we could get the Ohio Valley involved. Good idea for sure tho. I know there are many in the valley but getting them interested might be a full time job.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here