Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. You will find lots of help here. First off, your brother will need lots of help to get thru this. You might want to line up some friends and family to give you a hand too. Even if its just to pick up prescriptions, it will give you a break.
He will probably have a feeding tube placed in his stomach to take liquid formula feedings. It sounds difficult but it is very simple to do. He probably will also have a trach.
If at all possible, he needs you or someone to go with him to his appointments. Write down your questions and take notes. Its very hard for a patient to go this alone, Ive done it and dont know how I got thru it.
A few questions to ask might be..... How much of the jaw is going to be removed? What will replace the jaw? Steel or bone from his leg? Will he need chemo and radiation? How long of a hospital stay? Is he being treated at a cancer center? Is this going to be one surgery? Will the teeth be removed at the same time as the jaw surgery? How many of these surgeries have you done before?
Has your brother had any other opinions? Surgeons always cut. Has he already had chemo and radiation?
Im sorry if I bombarded you with info, its pretty overwhelming to be faced with this. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |