I have been getting some good news recently regarding my nodules. I had a PET/CT after the third round of chemo. When I went to the hospital for the fourth round the Oncologist decided to cancel since the response in my lungs was complete after 3 treatments of Carboplatin/Taxotere IV + 5FU 96 hour pump. I was shocked. My first prognosis wasn "10-12 to live, we can't stop this". Fortunately we went for the second opinion and went to Johns HOpkins in Baltimore. The folks at JHH are so with it as far as treating HN SCC caused by HPV-16.

This week I had a needle biopsy ih the neck and another in the BOT as well as removal of a pesky Aphthuous ulcer. I will know next week what course of action remains for my treatment. The Dr. stated she was thinking of just 5FU by capsule. She apologized for over medicating me! Getting chemo without radiation is a walk in the park. I also went with loads of supplements prescribed by a naturopathic doctor. The ND is key to my keeping strength in between. Neulasta shots are great as well.

Still in the fight. I'd like to hear about any folks that have good results working with N.D.s.


Bill age 47 at Dx, non-smoker

1st DIAG: 8/06/2008 SCC BOT T4N1M0

2nd Diag 10/14/09 Mets in lungs

3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2


In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.