Hey,

Without knowing exactly ...

But this sounds very similar to my adventure.

I can say that the ND in my case was in a neck fold and healed up enough that it is actually hard to see unless I am looking hard to the side. While it looks bad now, time will improve things.

3 years since DX and coming up on the 3 year post TX mark, I can offer encouragement. Quality of life is still improving and I get shocked looks from folks if the subject comes up.

The fight isn't easy, takes some courage but it can be won. Second, third, tenth opinions ... whatever it takes to make the best choice. You are in the best of places for support and advice, I wish I had found The OCF while I was in TX.

Keep your chin up, your eyes open, hopes high and focus on the light at the end of the tunnel. A good attitude does make all the difference for both of you.

UncleVern



ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.