Linda,

Get militant woman. If YOU are not as agressive as all hell things won't get done. The medical professionals at most of the facilities I've gone to are just like you've said...desensitized. They have no "buy-in" with Carol because if they did they would go out of their way to make sure she got what she needed when she needed it.

Same as your situation, my RO wouldn't touch scripts, nor would my ENT..that was all left to my MO..so touch base with them. Your GP has no expertise here at all, if this person can't be used as an advocate to get Carol what she nees when she needs it...there's no reason to mess with them. Speak up here and be assertive, these chumps won't listen or act unles YOU take the reigns. These people are working for you now...so get into "boss" mode and start laying down your expectations. If they aren't performing how you think they should be...let them know...ASSERTIVELY. If they don't listen start yelling up the ladder.

Go Get Em.

Eric