Well, our good news was short-lived. Unfortunately, there are now three openings along the suture line on the new skin graft. They weep constantly--creamy white junk. I contacted the PS and we will be seeing him on Thursday. I haven't been on here much. A peek now and then at what's going on. I was hoping that we might have slipped quietly into the background as things seemed to have been moving closer to the old normal. Not so. I now know that doesn't really exist anymore. It is just so sad!

The eating issues are the same, too. Clark can't chew yet and even when he drinks something, he still gets sharp pain in his jaw. Brothy soups and milkshakes are doable. The PEG is still our friend. He does think his sense of smell is coming back. And then taste should follow. Still on pain meds but he has cut back a lot.

We have been very busy addressing other issues related to the recent surgery from November. Some are too personal, so I'll leave it at that. The cascade of events are very challenging but manageable. As if OC wasn't bad enough, there are these other things one could not predict.

To everyone out there, thanks for the support. We still need whatever you have to offer. This OC is so freaking tough! I haven't felt this way in a long time. I'm getting in a private crying jag while I am typing. I am usually so optimistic--just a bad day I guess. Sometimes I feel so helpless. I wish I could relieve my husband of some of these frustrations. It is so darn sad.

Anita