thanks christine... i added what i know about him in the surgery. im in NJ and theyre in syracuse and i've been getting limited info. I think part of this stems from my fiance's family being unfamiliar with the medical field and possibly being nervous to ask questions. You're right- I am sure this may have been discussed before the surgery and it just was not communicated to me.

with the steel jaw, are you still able to eat or drink I see you have a PEG in now, but when you didnt?

i feel really bad that he might be coming home right around thanksgiving... it will be really torture for him to not be able to eat with us frown
i dont mean to be rude but do you have suggestions of how i can kind of "comfort" him in that regard? he said he would just be sitting in his room while we ate. What can i bring him that will help him feel included? do you miss food when you're at that point or do you stop craving things? thanks so much for your advice.

PS i made a signature... i realized its not as technically advanced as some others are like yours, im just putting in what i know right now. ill add to it more... thanks.


*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding