The same subject was discussed on this forum probably last year (before you joined) and so many of us were of the exact same opinion - we just felt like we were abandoned after treatments.

Unfortunately, I believe that is because OC has very little awareness and sometimes it can leave us with irreversable life changing issues that we have to deal with. It can have such a huge impact on just going about our day to day living. Swallowing, eating and speaking just to mention a couple.

Healing, both physically and mentally from this disease can take months after treatments have actually finished.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery