"OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | The same subject was discussed on this forum probably last year (before you joined) and so many of us were of the exact same opinion - we just felt like we were abandoned after treatments.
Unfortunately, I believe that is because OC has very little awareness and sometimes it can leave us with irreversable life changing issues that we have to deal with. It can have such a huge impact on just going about our day to day living. Swallowing, eating and speaking just to mention a couple.
Healing, both physically and mentally from this disease can take months after treatments have actually finished.
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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