| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Well, I went to see my ENT again today. He said that we will watch the lump on the side of my tongue. He did not want to do anything right away because my ear pain has eased up a lot. He also said that the pain is probably referral pain from that lump. I go back in four weeks. He said that if it gets worse before then call and we will schedule surgery. If is the same in four weeks and hasn't gotten better then we will schedule surgery at my next appointment to take out the lump and send it off. Anyway, he said was a little bit concerned because of my history and that I am having some of the same symptoms, but kept pointing out that I did have a clear PET scan. Anyway, I have no idea what to think at the moment. Should I be worried? Should I have said let's take it out now? My husband wants another PET scan before the surgery. I told him that the Dr. said that the only way to know if it is cancer is through a biopsy. He did say that PET scans ar enot 100% reliable and neither are MRIs. He would rather have a negative biopsy then something growing my mouth. Anyway, I guess I will know more in 4 weeks.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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update, neither good or bad
| walknlite | 10-09-2009 10:08 PM |
Re: update, neither good or bad
| EzJim | 10-09-2009 10:57 PM |
Re: update, neither good or bad
| wilckdds | 10-10-2009 02:00 AM |
Re: update, neither good or bad
| Brian Hill | 10-10-2009 02:31 AM |
Re: update, neither good or bad
| boatswife | 10-10-2009 06:13 AM |
Re: update, neither good or bad
| Pandora99 | 10-10-2009 07:58 AM |
Re: update, neither good or bad
| walknlite | 10-10-2009 11:40 AM |
Re: update, neither good or bad
| EzJim | 10-10-2009 12:05 PM |
Re: update, neither good or bad
| walknlite | 10-10-2009 01:31 PM |
Re: update, neither good or bad
| wilckdds | 10-10-2009 02:12 PM |
Re: update, neither good or bad
| walknlite | 10-10-2009 04:39 PM |
Re: update, neither good or bad
| boatswife | 10-10-2009 05:55 PM |
Re: update, neither good or bad
| walknlite | 10-10-2009 06:13 PM |
Re: update, neither good or bad
| boatswife | 10-10-2009 06:36 PM |
Re: update, neither good or bad
| wilckdds | 10-10-2009 07:32 PM |
Re: update, neither good or bad
| EzJim | 10-10-2009 09:19 PM |
Re: update, neither good or bad
| mommablanton | 10-11-2009 02:11 AM |
Re: update, neither good or bad
| Charm2017 | 10-11-2009 03:09 PM |
Re: update, neither good or bad
| walknlite | 10-11-2009 06:20 PM |
Re: update, neither good or bad
| Karen Rose | 10-11-2009 10:55 PM |
Re: update, neither good or bad
| boatswife | 10-12-2009 01:06 AM |
Re: update, neither good or bad
| walknlite | 10-12-2009 02:13 AM |
Re: update, neither good or bad
| wilckdds | 10-12-2009 03:24 AM |
Re: update, neither good or bad
| walknlite | 10-12-2009 10:49 AM |
Re: update, neither good or bad
| wilckdds | 10-13-2009 11:04 PM |
Re: update, neither good or bad
| suzanne98 | 10-13-2009 11:14 PM |
Re: update, neither good or bad
| walknlite | 10-14-2009 11:35 AM |
Re: update, neither good or bad
| wilckdds | 10-14-2009 09:49 PM |
Re: update, neither good or bad
| EzJim | 10-14-2009 10:16 PM |
Re: update, neither good or bad
| walknlite | 10-14-2009 10:44 PM |
Re: update, neither good or bad
| suzanne98 | 10-14-2009 11:28 PM |
Re: update, neither good or bad
| walknlite | 10-15-2009 02:45 PM |
Re: update, neither good or bad
| wilckdds | 10-15-2009 06:35 PM |
Re: update, neither good or bad
| walknlite | 10-15-2009 09:11 PM |
Re: update, neither good or bad
| boatswife | 10-15-2009 09:41 PM |
Re: update, neither good or bad
| suzanne98 | 10-16-2009 12:27 AM |
Re: update, neither good or bad
| EzJim | 10-16-2009 12:32 AM |
Re: update, neither good or bad
| walknlite | 10-16-2009 03:28 AM |
Re: update, neither good or bad
| boatswife | 10-16-2009 03:53 AM |
Re: update, neither good or bad
| EzJim | 10-16-2009 11:55 AM |
Re: update, neither good or bad
| walknlite | 10-16-2009 12:54 PM |
Re: update, neither good or bad
| suzanne98 | 10-19-2009 12:56 PM |
Re: update, neither good or bad
| walknlite | 10-19-2009 10:41 PM |
Re: update, neither good or bad
| EzJim | 10-19-2009 11:50 PM |
Re: update, neither good or bad
| suzanne98 | 10-20-2009 12:04 AM |
Re: update, neither good or bad
| Malka | 10-20-2009 11:11 AM |
Re: update, neither good or bad
| Eileen | 10-20-2009 04:58 PM |
Re: update, neither good or bad
| walknlite | 10-20-2009 11:14 PM |
Re: update, neither good or bad
| Susan2992 | 10-21-2009 04:38 AM |
Re: update, neither good or bad
| Charm2017 | 10-21-2009 01:39 PM |
Re: update, neither good or bad
| EzJim | 10-21-2009 02:29 PM | |
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