I am the primary caregiver for my 87 yo mother who was diagnosed in March of 2007 with oral tongue cancer. At that time she was Stage 1 (T1N0) small cell carcinoma. In April 2007 she underwent a partial glossectomy and supraomohyoid neck dissection. Her recovery was remarkable and she did well for two years. In May 2009 she was diagnosed with a recurrance of the cancer in a lymph node in her neck (sorry I don't have the paperwork for that with me to be more specific right now). At the time of her surgery the tumor was 5cm. The surgery was performed to relieve the tremendous pain in her ear and head. It was successful. She was not a candidate for further treatment due to her weight (70 lbs) and other health issues.

On Friday, August 21st another enlarged and painful lymph node was found between her neck and shoulder. Her doctor recommends comfort measures only. I and my family are in agreement with the doctors regarding this decision. But my concern is what will happen next and can we manage her care at home. Our goal is to care for her in her own home as long as possible. I guess I am looking for someone who has had a similar situation and can advise me as to what we are looking at in the near future. Thank you.