"Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Hi Coquito,
Jack had the PEG tube yanked out and didn't have any pain, more a moment of pressure. That was 2 1/2 months post treatment. I think Amy laid it out pretty clearly for you and I would answer those questions before you get it removed. It really could be too tight but if you are not using it because you are able to eat and drink AND it's bothering you then I would talk to your doctor about having it removed.
They don't need to wait until the scan but you do need to show that your weight has stablized before the doctor agrees to remove it. You can increase your intake by mouth to regain the weight as long as you are swallowing okay. Are you keeping track of what you are eating and aiming for between 2500 and 3000 per day? The PEG tube was a lifesaver for Jack but he was using it and it doesn't sound like that's the case for you.
Good luck, JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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