Hey Georgette

it always amazes me how many carers come here in this post TX period.It seems that while the whirlwind of treatment is happening we all "cope" because things are happening and that carries us along.The month or so after it all stops is a real bummer.Nowhere to go,no support network,nothing to do and such high expectations when that last treatment is over.

Patients want to feel better quickly and carers just feel lost as they see their loved ones sleeping sometimes 18 hours a day,withdrawing into them selves as they have too much time to think about what has and is happening to them.The resentment at you because you are starting to pick up the thread of your life and they can't oh my god georgette its a mine field,and you are in the firing line.This medication thing is common too and seems to happen when you feel able to hand control back and stop dedicating 24/7 to being nurse/mother.Its a bit like any behaviour good or bad is getting your attention.Tough love can work sometimes although from my experience the confrontation this can cause is also very upsetting and negative to you both and in my case Robs bad behaviour regarding meds and stuff led to me walking away for ten days after a massive "fight".Its part of the journey sweetie,and in many respects its the hardest part,but you are not alone and it will pass i promise.

Any help or advice you need feel free to put down your worst feelings here,because i can assure you someone else will have had that experience and can talk you through it.

keep your chin up

love liz