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New to forum/Swollen tongue ThelmaMelma 18 hours ago
Hello! I’m 3 years post op, radiation and chemo for squamous cell carcinoma stage 4. I’m still experiencing swelling on my left side of cheek, jaw and tongue swelling. The tongue is swollen and causing scalloped tongue against my teeth and causing an indented tongue pain that no doctor or dentist cannot seem to help with. Any suggestions?
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Re: Barbaravs ChrisCQ 18 hours ago
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Re: Barbaravs ChrisCQ 18 hours ago
These folks mentioned botox shots, physical therapy, and a procedure to cut the muscle (last resort I am sure...)

https://oralcancersupport.org/forums/ubbthreads.php/topics/183983/new-with-trismus#Post183983
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Re: Barbaravs ChrisCQ 18 hours ago
Hello Barbaravs,

I lack any experience with that.

I did a quick search, after logging in, (the search feature is not available if you are not logged in to your account when browsing the forums).

https://oralcancersupport.org/forums/ubbthreads.php/topics/200246/trismus-treatment#Post200246 (not sure if hyperlinks to forum posts work, TBT)

Is one where some folks were using tongue depressors to stretch the jaws open, going from one to two to three of them stacked at a time.

I guess they have devices for the stretching, but the one person was so severe they could not get the device in, so they had to start with tongue depressors.

You may have more luck browsing through the results of your own search of the forums for "Trismus" in the search window in the upper right corner of the screen.

It seems more folks are active on the Reddit forums for Head and Neck Cancer, in terms of getting a lot of responses, quicker.

The forums here on OCF have more depth and are more searchable.

Best wishes for a solution that works for your husband.
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