Try to remember to take a pen and notepad with you to write things down. Or better yet, bring along someone to be your ears. Its so common to not hear everything they tell you. It can be very overwhelming.

I only had cisplatin twice. I was scheduled for 3 rounds but got so sick they cut it back. First dose was very strong and then the second one was cut down due to my side effects and third one cancelled.

Its really important to keep up the anti nasuea meds cuz just when you think its ok not to take them....WHAM!!!! Sick as a dog, and cant even keep the meds down. Thats just my story, not everybody gets so sick from it.

I did take anti nasuea meds the whole time of radiation and even about 2 weeks after. Treatment was pretty hard for me since I wasnt lucky enough to have a caregiver. Just remember everyone tolerates this differently. Just like oral cancer can be in different places and different stages, thats why so many different reactions. Hope tomorrow is a good day smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile