 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Nicki,
I am sorry you and Tom have to wait so long for Tom's surgery. I can't imagine how heavy this must be on the mind and the heart. Much of what Tom is experiencing right now is just part of the grieving process that one experiences after such a tremendous loss. Tom (and you, of course) has lost his old life and especially right now is just starting to experience the worst part of radiation and now is facing surgery. Any one of these things would be tough by itself.
I am praying for comfort and peace for both of you and for His wisdom and guidance for the entire medical team to provide the best possible treatment for Tom. I know through it all, He will be there to carry you and/or Tom when you need it most.
God Bless,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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