 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | JPT68, luckily for me my tongue was not involved in my surgery, it was primarily my L jaw. I did have tissue moved from my wrist to my jaw area.
As you will notice, every patient/survivor here is slightly different. No two situations are exactly alike, everyone's case is unique which makes it very difficult to compare. The doctor can always tweak your surgery down the road if any reconstruction would be needed. I understand the apprehension with the upcoming surgery. Its scary going into this unknown territory. Do your best to stay busy to keep from worrying too much. As much as you can focus on whats controllable in your life and avoid the "what if's" at any cost.
Best wishes!
PS... Im looking forward to seeing your signature. I had forgotten about your previous rads when I replied yesterday.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
