John,

My treatments(s) had a more unusual path, circumstances, than most, like yourself. I had two peg tubes, the first was without my knowledge when in ICU losing over 110 pounds from cancer cachexia, and only on IV for several months. Then when I was finally released 6 months later, I had it removed after a clear PET/CT, which everyone was amazed with no further treatment other then chemo 8 months earlier. But I had a recurrence a month or two later, and already had compromised swallowing, and trismus, that a Peg tube was recommended for radiation. My oncologist said would not be able to tolerate chemo. I kept it for four years though 10 more radiation, chemo and surgeries, some were tube dependent, and I finally had it taken out or say yanked out, two weeks ago, approved by my doctors, SLP, after I was free of cancer for a year as I have had persistent cancer the past 5 years,10 months.

I tell you this to never lose hope or give up. The body is amazing in it's recovery, and was about to write myself off several times, but after waking up each day, but that's only half the story, I had some hope, and basically able to eat most foods now with a mechanical soft diet, due to no teeth, otherwise I would be eating pizza, but I whip up all kind if foods I can eat, and enjoy.

Best wishes!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs