 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cheryl,
Don't worry about getting out your story. It is horrible and I'm sure as hard as it may be for some to hear, it is important for you to be able to have found someplace where people understand, somewhat, what you are dealing with. We all have a choice in how much we want to read. Your options of having an ear to bend, a shoulder to lean on are much more limited.
I am so sorry where things are now. I can't even imagine what you are going through. I pray with you for comfort for Doug. I also pray for comfort for you and for more people to step forward and give you at least some type of rest.
What we see you going through is a person so fortunate to have you by his side to feel your love. It is a beautiful thing indeed. May you feel His presence in all you are and all you do. May His grace be sufficient for you and Doug, now and forever.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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