 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cheryl, I don't really see your ranting at all. I hear you asking for help. I used the term spirituality as opposed to religion for a reason. It doesn't have to be religious as much as just processing beliefs when dealing with a terminal condition other than just life itself. Your husband is really struggling right now and needs some help. I don't know that he wants any and that's ok too.
How about you? Could you benefit from speaking with a professional? What you are currently facing is something that few can ever understand. The stress from it all is so hard on the body and mind.
Do either of you have family in the area?
I totally understand not wanting to leave him alone. You should address this and find a way to get a release from it evn if only a few hours a week.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
