Thank you for the welcome. I have contacted hospice, but at this time, as long as Doug is fighting and staying in the hospital system they say not much they can do till he is ready. I am grateful to have found this site, tonight is the first time in a long while that I went to bed not feeling so alone.
Cheryl 1st post under(Introduce Yourself Re:I've waited too long) Caregiver to Doug Dx 8/31/10 Stage 4 HPV(?) SCC Tonsil, Tongue, Jaw and Lymph-nodes 98% Glossectomy Bilateral Neck Dissection x 2 Trach and PEG indefinitely Palliative weekly Chemo Carboplatin-Pemetrexed-Erbitux
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