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Biotene products #172658
10-16-2013 12:09 PM
10-16-2013 12:09 PM
Joined: Mar 2002
Posts: 4,744
Boise, ID and Portland, OR
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Brian Hill Offline OP

OCF Founder
Brian Hill  Offline OP

OCF Founder
Patient Advocate (old timer, 2000 posts)
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Joined: Mar 2002
Posts: 4,744
Boise, ID and Portland, OR
As many of you know OCF has been a promoter of the Biotene dry mouth products for many years. I am putting up this post or to let everyone know that we are no longer advocating that anyone use any of these products. We have taken all their information down from our website, and we will not be working with them as sponsors for any of our events.

I will elaborate on this over the weekend in detail, but the products have changed into some cheap, unhelpful, and potentially harmful products since GSK recently reformulated them to make more profits. All the good ingredients such as the expensive enzymes, are gone from them, and they have added other chemistries to them that might actually be harmful to you.

This is all happening to generate more profits for corporate shareholders. There is nothing of value in these products any longer, and if you are paying these big dollars for them you are wasting your money. You might as well by a $1.50 tube of Colgate or Crest at WalMart and save your money. In a post following this I will detail the whole situation, after I talk to my good friend Michael Pelaco who started Laclede and created the chemistries that were known as Biotene. But if you are buying these right now, I suggest that you do not. It is a financial waste of money, and when I get the full ingredient list to you this weekend, you will see what they have put in these products that is potentially harmful to you. This is nothing but corporate greed at its worst, and the loss of a great product from the marketplace.

OCF is working with two other companies to try to get someone interested in this small niche marketplace to put a product out in the world that we can all use, that will be helpful for those of us that suffer from dry mouth.

This is a particularly sad turn of events that a multi billion dollar company would ruin something that had a following and worked well, to make a few more dollars for their shareholders. This has become a topic of discussion on boards around the web including the Amazon product comments section. GSK has made a huge mistake. They think that people will not notice and that this cheap substitute will not jar the HABITS that users have when they buy the product. This is an insult to their loyal customers.

But I am not surprised that after spending more than 190 million dollars to buy the company, that they think that no one will notice that they have corrupted the product. This happens so often when a giant entity buys some small company. A large entity buys a unique, innovative, company or product, and then once they own the brand, they start changing it to make greater profits. Michael P. is a person that wanted to create something that would help those of us that suffer from these treatment related issues. I can tell you that he is heartbroken that they have ruined something that he dedicated a large portion of his life to bring to market to help all of us. But he is no longer involved with the product or the company. Now OCF is going to distance ourselves from this as well. All you have to do is read the active ingredients label on the product, to realize that it is a brand new product/formula. One which is lesser in every way.

Last edited by Brian Hill; 11-03-2013 04:12 PM.

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Re: Biotene products [Re: Brian Hill] #172665
10-16-2013 05:26 PM
10-16-2013 05:26 PM
Joined: Jun 2007
Posts: 10,364
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
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Joined: Jun 2007
Posts: 10,364
PA
Thanks for watching out for everyone and informing us about this change. What a shame that greed won out!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Biotene products [Re: Brian Hill] #172681
10-17-2013 05:55 AM
10-17-2013 05:55 AM
Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
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davidcpa Offline
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davidcpa  Offline
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Posts: 8,311
Gulfport, Florida
I just bought a new tube of the toothpaste and some of their gum yesterday (nice timing smile ) and after reading Brian's post I compared the old tube labeling and ingredients to my new tube. HUGE DIFFERENCES. The new tube list ZERO ingredients other than fluoride and even that's a different type. The old tube expounded on the benefits of their paste for dry mouth but not so with the new tube as it only says it's basically a toothpaste.

Not so with the gum as everything is the same with the one I got yesterday with ones purchased weeks ago but that could be that I just bought gum manufactured before the change.

I will be interested to see the future posts Brian talks about.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Re: Biotene products [Re: Brian Hill] #172690
10-17-2013 08:08 AM
10-17-2013 08:08 AM
Joined: Mar 2002
Posts: 4,744
Boise, ID and Portland, OR
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Brian Hill Offline OP

OCF Founder
Brian Hill  Offline OP

OCF Founder
Patient Advocate (old timer, 2000 posts)
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Joined: Mar 2002
Posts: 4,744
Boise, ID and Portland, OR
The gum was never a big seller, and there is likely new old stock around everywhere. I don't think they will continue making it since it hasn't been a big profit center for them.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Re: Biotene products [Re: Brian Hill] #172694
10-17-2013 11:21 AM
10-17-2013 11:21 AM
Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
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davidcpa Offline
Senior Patient Advocate
davidcpa  Offline
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Joined: Sep 2006
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Gulfport, Florida
Well I have a stockpile of 14 boxes so I'm good for appx 224 days give ot take. smile


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Re: Biotene products [Re: Brian Hill] #172732
10-18-2013 06:09 AM
10-18-2013 06:09 AM
Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
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davidcpa Offline
Senior Patient Advocate
davidcpa  Offline
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Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
Bart sent me a PM with the following comment about my post re the Biotene gum. I'm posting his comment to me because Bart says this Thread is blocked from comments other than us people in RED and I wasn't aware of that.

"But I wouldn't recommend paying the freight, when any gum with a non-sucrose sweetner, and especially with a Xylitol sweetner, such as Trident (I use their "Tropical Twist" flavor and get it in 3-pack plastic packaging.

The Trident (and I'm sure that most of the big brands offer a Xylitol variant) is MUCH cheaper than the biotene, and the gum itself seems to last much longer as well.

I learned about this from my dentist, who sells mints made of Xylitol for dry mouth."


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Re: Biotene products [Re: davidcpa] #172736
10-18-2013 08:54 AM
10-18-2013 08:54 AM
Joined: Jul 2009
Posts: 1,392
Los Angeles
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David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
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Joined: Jul 2009
Posts: 1,392
Los Angeles
Uhboy, what a drag. I've got probably 2 or 3 unopened tubes of Biotene toothpaste on hand, at about 10 bucks a pop, as well as the same in mouthwash.

Brian, do you recommend a substitute?

Thanks for all the great work per usual.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 10 years all clear in 6/19 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Re: Biotene products [Re: Brian Hill] #172759
10-18-2013 02:36 PM
10-18-2013 02:36 PM
Joined: Aug 2011
Posts: 596
MA
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Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
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Joined: Aug 2011
Posts: 596
MA
I've noticed that there are a lot of other brands at the drugstores who are jumping on the "dry mouth product" bandwagon...i.e. Colgate, Crest, Act. Not exactly sure which companies, but they are some of the big ones that have had products on the market for a long time. I suspect that they are trying to get their share of the marketplace. Perhaps these companies knew of the purchase of the Biotene company and scurried to get their products on shelves. It wouldn't surprise me if they contained (essentially) the very same formula. I'll have to compare labels the next time I go into CVS. Thank you, Brian, for always looking out for us and doing what is best for OCF.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Re: Biotene products [Re: Brian Hill] #172760
10-18-2013 02:44 PM
10-18-2013 02:44 PM
Joined: Mar 2013
Posts: 421
Shenandoah Valley, VA
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fishmanpa Offline
Platinum Member (300+ posts)
fishmanpa  Offline
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Joined: Mar 2013
Posts: 421
Shenandoah Valley, VA
This stinks! I used the toothpaste during treatment as it was the only thing that didn't burn the heck out of my mouth. I've been using the Oral Balance gel at night as it kept my mouth moist.

Any recommendations for a similar product?

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
Re: Biotene products [Re: Brian Hill] #172870
10-21-2013 06:09 AM
10-21-2013 06:09 AM
Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
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davidcpa Offline
Senior Patient Advocate
davidcpa  Offline
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Patient Advocate (old timer, 2000 posts)
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Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
David2, If you have the old formula those tubes are still OK.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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