#99807 07-19-2009 06:44 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Hi all, I dont post here as much as I used to but I do come here often. I just celebrated my 2 year anniversary of treatment ending. I have suffered from many mental problems since the cancer. I have been diagnosed with post traumatic stress disorder, depersonalization and major depressive disorder. I started group counseling a few months back and am seeing their staff psychiatrist. I finally found a psychiatrist who has diagnosed me right and am on the right combination or meds. I feel better than I have felt since the treatments were over. I am getting ready to go back to work parttime and work my way into full time. I give all the credit to God and I feel without Him I wouldnt be to the point where I am today.
Thanks all for listening,
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Congrats Billy and I am with you on God being such a great help. Keep up the good work and keep us posted as to your progress.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey Billy
nice to hear from you and get an update.congrats on the two years,and as for the rest...keep on trucking
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I am very happy to hear from you, and very happy that you sought help. Too many don't. I agree - we don't walk alone - God is with us and it sounds like you are on the right track to reclaiming a well balanced life. Thrilled to hear you are physically healthy as well.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Billy
Good for you. the good nuns in Catholic school all stressed that [quote]God helps those that help themselves[/quote] Now this may be the most often quoted religuous phrase that is not found in the Bible (usually ascribed to Ben Franklin's Poor Richard's Almanac in 1757 but a variant on Aesop, the Greek �The gods help them that help themselves" fron hia fable: Hercules and the Wagoner�
Keep the Faith
charm
Last edited by Charm2017; 07-20-2009 12:19 AM. Reason: history
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Billy,
Nice to hear from you again and I'm really glad the cancer has stayed away. Sorry about the mental issues though and lets hope this combo of meds does the trick. My 79 yo MIL was initially Dx'ed with early onset dementia and put on a lot of diff meds. She was like a zombie until about a 1 1/2 later another doc determined that she was just having mini seizures and totally changed her meds and now she functions like a "normal" 81 yo.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Thanks so much for the well wishes yall.
David, I will keep you MIL in my thoughts and prayers.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Billy,Congrats on two years free and may you have many many more ahead of you1 Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on your 2 year mark. Glad you have healed. Sorry to hear of your other struggles but happy that you are overcoming them. OC is a long difficult road for all of us weather its as the patient or caregiver. Wishing you continued improvements and happiness in your new life.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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