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#99686 07-17-2009 05:48 PM | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | OP  "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Hi everyone, just need a bit of advise. Steve is 5 days into a 35 dose radiation. He also had cisplatin 4 days ago. So far he's been going really well but last night and today he is extremely tired. He slept for almost 15 hours last night and is now back in bed, where he's been for 2 hours already. Is this normal? I know fatigue is a side effect but should he be this tired, this early? Any helpful advise would be greatly appreciated.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | OP "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | sorry, posted in the wrong spot. Should have put it in currently in treatment but figure you guys will be able to help anyway hopefully
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Wendy,
I'll I did was sleep. I was also taking Ativan, so...
Make sure he stays hydrated, isn't running a fever. But, I would say if the guy wants to sleep and that's the only side effect its pretty normal. Or it was for me. Might be a sign of depression also.
Amy
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Wendy,
Sleeping is very normal at this stage and please be prepared for the fact that he may want to only get out of bed to do his treaments and then get back in bed until the next one. You will need to keep up with the amount of liquids and calories he is consuming daily during this time- [monitor his weight and most importantly his liquids so he doesn't get dehydrated] You might want to get some Pedialyte [found in the baby isle in gro. stores] in the pantry - it is good for replenishing electrolytes
quickly - Gatoraide also helps- you don't want to have to haul him to the ER for an IV if you can help it. If he doesn't want to eat or drink during rad- it's gonna be tough but you need to stay on top of that. Are you charting his liquid and calorie intake daily? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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