#99653 07-17-2009 07:53 AM | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi:
I had tonsil cancer with my chemo and radiation treatments ending Jan 08. I just got the results from my PET scan that I have each 6 months, and everything was clear, with no activity. THANK THE GOOD LORD! I had 7 weeks of radiation with one day each week of chemo. My side effects are mostly those shared with you all to include: heavy mucus (mine has a putrid sweet taste), no appetite, trouble swallowing, sore mouth, to name a few. Hopefully, these will go away some day??? I'm going to an oral medicine specialist at the University of Alabama in Birmingham next week to see if there is anything that can be done to help alleviate some of these problems, and will let all know.
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 |
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Awesome news. I look forward to hearing about many many more clean scans for you.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 128 |
Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
| | | | | Joined: Aug 2008 Posts: 16 Member | | Member
Joined: Aug 2008 Posts: 16 | WFC: Wonderful! Hope for MANY more clean scans.
Nancy F 66 Tongue cancer T4 N1 M0 Completed 2 3 week sessions of chemo. Shrunk tumor 40%. Then Cisplatin only, 2 weeks on and 1 week off during 7 weeks of radiation.
| | | | | Joined: Jun 2009 Posts: 14 Member | | Member
Joined: Jun 2009 Posts: 14 | Congrats. . .
Or as they say where I come from, Mazel tov!
Age 61, stg IV SCC (tonsillar, invasive at back of tongue, spread to neck lymph nodes); Dx Nov. 2008, nonsmoker since 1974, very light drinker, no other health issues; no surgery, no PEG, 4 cycles chemo (TPF), then weekly chemo + 7 weeks radiation (2 per day) incl IMRT = 70 doses total, done 6/4/09
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Congrats, It is encouraging to read news like this. Keep up the good work and us informed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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