#99242 07-10-2009 11:50 PM | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I just checking to see if anyone has gone through this. I to the point were salt, ketchup, ranch dressing, and many other foods. When I eat it almost kills my tongue and mouth. I getting to the point were I do not want to eat again. I do not know if I am having a 2nd fight with thrush. Can anyone give me any pointers on this.
Last edited by lvredrock; 07-10-2009 11:54 PM.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Jun 2009 Posts: 24 Member | | Member
Joined: Jun 2009 Posts: 24 | A fellow Las Vegan! Nice to meet you. Have you seen your doc about this? I'm sure that he or she could answer your question about thrush. When I was about 30-45 days post tx, I had mouth/tongue pain that was excruciating. I told my docs that it was "like having a mouth full of bees". I was given viscous lidocaine to use until it passed. It was a pain to keep using it every few hours and it tasted kinda yukky, but it did help me through that period. Might be worth asking about.
Dana, Male, Age 52, DX 11/08
SCC right tonsil, Stage 3. RND, tonsilectomy, and PEG install done collectively 12/26/08, Cisplatin x3, IMRT x35. Post-TX PET clear 9/09, PEG removed 9/09, PEG stoma surgical repair 9/17/09. Dx renal cell carcinoma 11/09. Partial nephrectomy 01/10.
| | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I will do, I see my cancer dr. on Monday. I am almost at my 2 year point of being cancer free.
Thank you for the info
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Aug 2008 Posts: 16 Member | | Member
Joined: Aug 2008 Posts: 16 | How many dental implants? Forgive me for being so bold but aren't they very costly?
Nancy F 66 Tongue cancer T4 N1 M0 Completed 2 3 week sessions of chemo. Shrunk tumor 40%. Then Cisplatin only, 2 weeks on and 1 week off during 7 weeks of radiation.
| | | | | Joined: Aug 2008 Posts: 16 Member | | Member
Joined: Aug 2008 Posts: 16 |
Nancy F 66 Tongue cancer T4 N1 M0 Completed 2 3 week sessions of chemo. Shrunk tumor 40%. Then Cisplatin only, 2 weeks on and 1 week off during 7 weeks of radiation.
| | | | | Joined: Jun 2009 Posts: 24 Member | | Member
Joined: Jun 2009 Posts: 24 | 2 years! FANTASTIC!!! :-)
Dana, Male, Age 52, DX 11/08
SCC right tonsil, Stage 3. RND, tonsilectomy, and PEG install done collectively 12/26/08, Cisplatin x3, IMRT x35. Post-TX PET clear 9/09, PEG removed 9/09, PEG stoma surgical repair 9/17/09. Dx renal cell carcinoma 11/09. Partial nephrectomy 01/10.
| | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I had 6 implants placed and they are doing great. It was a long fight with my medical insurance. They were happy to pay to have the teeth removed before treatment. But they would not pay to replace them. My company is self insured and it took them to rewrite the contract to get it done. If I had to pay for it, I would still be with out back teeth. I know just placing the teeth was 7k and the implants were close to 10k or more.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
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