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ChristineB #102183 08-23-2009 08:22 PM
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Christine,

Your body will be different, but your heart will be just as good as ever. You're gonna be missed while you're in the hospital but know that you've got a huge fan base backing you up!

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
margaret_in_ma #102185 08-23-2009 08:27 PM
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Christine,

Ditto what MA Margaret said!! Great minds and Margarets think alike. :-) You've got a ton of people praying and rooting for you and we are looking forward to when "you will be back" on the boards daily again soon!!

Love,

Margaret


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #102187 08-23-2009 08:57 PM
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Thanks to the 2 Margarets smile

Boy am I gonna be lonely while in the hospital. I will miss all my OCF pals. Im very lucky, I live near a few who will be visiting me smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #102188 08-23-2009 09:02 PM
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Christine,

I'll be praying for you tomorrow, and I'll see you later in the week when you are allowed visitors.

See you soon!!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Susan2992 #102189 08-23-2009 09:29 PM
Joined: May 2007
Posts: 666
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there are many of us rooting for you....
and that donation, you just have to make it yourself!

BEST

Markus


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #102195 08-24-2009 01:44 AM
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The time has come to finally get rid of cancer once and for all.

Im determined to be back.

See you all very soon!!!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #102196 08-24-2009 02:32 AM
Joined: Mar 2009
Posts: 109
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Hope all goes well today. Can't wait to see you back.


38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
Jenka #102206 08-24-2009 04:25 AM
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Posts: 5,260
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Christine, I am praying that everything goes as planned only just a little better. Remember the funny looking thing hovering over you is my spirit and the beautiful things are the angels guarding and helping you. Take this hug with you into the OR ... (((((((((((((((((((((HUGGING YA))))))))))))))))))))))


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Malka #103025 09-05-2009 04:24 PM
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Posts: 3
Malka
I have had 4 resections of my jaw for an unusual oral melanoma, over a 4 year period. It now looks like they need to replace the jaw bone. The fibula replacement seems much more intrusive than the metal plate-and I am normally on my feet a lot. How are you doing several months later?
Mike


Michael Ballon
Michael Ballon #103048 09-06-2009 09:09 AM
Joined: Nov 2007
Posts: 681
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Michael'
I will start a new thread about the fibula flap
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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