Previous Thread
Next Thread
Print Thread
Page 16 of 18 1 2 14 15 16 17 18
Charm2017 #101763 08-18-2009 03:44 PM
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
Oh Charm, What a great idea!!! I love the index card idea...I bet that really came in handy:)


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #101775 08-18-2009 07:22 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Thanks for the info Pete. I like your directness. I hope you are doing ok now. I know you have gone thru a heck of a time with OC. I will remember you sense of humor about the flies. Those posts were pretty funny. Hows the critters?

Gabe, I still havent taken a peek. I must psych myself up for this. Maybe tomorrow. Thank you.

Charm, Im going to make myself a rolodex on a stick. Great idea. I will put my most common requests on there and use some of those small circular clasps and attach it to a ruler. This way if necessary I can bang the ruler on my table to get some attention to my index card.

Tonight I had a wonderful visit with my friend Susan2992. Im very fortunate to live near other OC survivors who are OCF members.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #101780 08-18-2009 08:06 PM
Joined: Jun 2007
Posts: 718
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 718
I love the rolodex on a stick idea! A noise maker is a great idea!!

Does Travis know that we are going to be eagerly awaiting information on your progress? Or should one of the cards say...post an update on OCF? :-)

Glad you had a fun night! Still can't figure out why there are so many people on the forum from PA and not many from WI. Although, I'm glad they are there for you!!

The rest of us are sending you tons of good vibes and prayers!!


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #101808 08-19-2009 05:46 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Travis knows he is expected to post updates on OCF for me. I tell him every single day at least once. When Im feeling up to it, I will have him bring his laptop to the hospital so I can do my own updates.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #101823 08-19-2009 12:09 PM
Joined: Apr 2009
Posts: 104
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Apr 2009
Posts: 104
Christine, you're in my thoughts daily. I think everyone else here has pretty much said it all...
Gretchen (on Facebook)


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
mgmichael #101858 08-19-2009 06:04 PM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Just want you to know I am praying for you. Wanted to ask you permission to put you on our prayer list at church. Is that okay?
You are a very strong woman and I look up to you. I just hope I can be as strong as you are.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #101871 08-19-2009 07:46 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
I would be happy to have any and all prayer that are out there. I can use every single one to get thru this.

Thank you.

A special thanks to Suzanne who has her whole family lined up with prayers for me.

I may be strong but I do depend on my OCF family to help me thru this. This support is so needed and appreciated.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #101872 08-19-2009 07:54 PM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Christine......may god bless you and keep you and the angels from OCF watch over you.(i've told rob to pass the word)

love as always

liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #101891 08-20-2009 03:18 AM
Joined: Jul 2009
Posts: 453
"OCF Down Under"
Platinum Member (300+ posts)
Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Jul 2009
Posts: 453
Christine, just wanted to let you know I will be thinking of you too. You are an amazing woman who has been a great help to me. Add another prayer from me smile


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
WendyG #101900 08-20-2009 04:32 AM
Joined: Aug 2009
Posts: 207
"OCF Down Under"
Gold Member (200+ posts)
Offline
"OCF Down Under"
Gold Member (200+ posts)

Joined: Aug 2009
Posts: 207
Hi Chistine, we only 'met' yesterday & you [among others] made me feel so very welcome. You are a very loving compassionate woman, and very brave. My thoughts are & will be with you in the future, to help you overcome this round as you did the previous 2.

Jeanna
xx


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
Page 16 of 18 1 2 14 15 16 17 18

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
Readyrice, Belen, TimSCarolina, BellaB, bevm
13,246 Registered Users
Forum Statistics
Forums23
Topics18,214
Posts197,059
Members13,246
Most Online614
Jul 29th, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5