#98305 06-28-2009 10:08 AM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | This is not specifically OC-related, but I thought it was interesting: The New York Times has an article today on how most of the National Cancer Institute and American Cancer Society grant funding for research goes to "safe" projects that make only incremental gains (if that) in the fight against cancer.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Incremental gains to them keeps the kitty flowing with the bucks to feed a lot of them. Must be the safe way or no way to them. Show a gain and get a gain.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | I think one of the most interesting points in this is how LITTLE the American Cancer Society spends on research given that they have taken in easily hundreds of millions (almost a billion) every year for the last ten years alone. I guess when you spend millions of dollars on fund raising, (their largest expense category) and run a multi-million dollar national TV campaign in the last three months alone with commercials that say no more than - ACS "WE SPONSOR BIRTHDAYS" (what a totally self serving waste of donors money!!) there isn't much left over to do research with. Note that OCF's early funding of Dr. Gillison were relatively inexpensive "proof of principle" small group studies (25 people), that once done, allowed her to obtain major funding from the NCI for her published studies. Maura has had a consistent string of epiphanies, but as a young, relatively unpublished researcher would have been discounted by the big guys, but her questions and ideas have been dead on. Early in the process she would have never been funded by NIH. Her funding mostly came from small groups outside the government like OCF. HPV in those days was not a hot topic that it is today. I am very proud that we have been able to cooperate with her and her team over the years to the point where her major source of funding does come from the government.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Leslie,
This article also caught my eye so I'm glad you posted it here. The amount of dollars thrown at so-called cancer research as compared to the actual results, is staggering.
And Brian, I have to say, I do admire your even handed, yet teetering on scathing, criticisms of 'business as usual.'
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Were it not for Maura Gillison and this site I probably would never have known what caused my cancer, not to mention all the other information she's discovered about oral HPV.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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