| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I would volunteer to take them,, but it would be too costly. I'm sure someone closer will take you up on your generous offer tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | I don't think it would cost loads if I take them out of the box. I will test a bag out and weigh it at the post office on Tuesday. Monday is a holiday for us so I can't go earlier and i got somewhat destracted today at the DIY store (I practically live there! I go to buy some nails and I come out with a car load a �100 less in my purse).
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: May 2009 Posts: 14 Member | | Member
Joined: May 2009 Posts: 14 | That is so funny, my husband watches the cooking shows all of the time too!
Spouse
Husband age 55
SCC BOT and 3 nodes HPV 16+ Diagnosed 2/13/09 Stage 4 T2N3M0
Neck Dissection 2/13/09, 6 chemo cysplatin/taxol, 35 rad TX completed 5/8/09, PEG removed 6/26/09, PET Scan 8/3, 2/3 Clear!
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | The Food Network is total torture but I can't tear myself away from it. Iron Chef, Throw Down with Bobby Flay, Chopped, I love them all and all I can eat is noodle soup, cereal and Ensure.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Jun 2009 Posts: 7 Member | | Member
Joined: Jun 2009 Posts: 7 | My husband had his 2nd chemo of Cisplatin and Taxotere last Wed. His throat and mouth are already so sore from the RT that he is using his PEG. He is so nauseous and having diarrhea since Sun. due to chemo. He is taking Phenergan and Zofran for nausea and then Lomotil and Imodium for diarrhea. I am having a hard time getting him to take anything in his Peg. He had 1 2/3 cans of Boost today and 1 can yesterday. The first week of treatment he lost 8 lbs. He has probably lost 6 lbs this week (just guessing)at least. The chemo doc told him today if he doesn't start getting more nutrition and liquid to balance the diarrhea and 1 time vomiting or he looses too much weight, they may have to stop his treatment. My husband says he is doing all he can do. Help, is there anything better for nausea and diarrhea? Would the doctor really stop treatment?
Diagnosed 05/09
PET clear 05/09 has not spread to lymph nodes
39 radiation scheduled, 8 completed
Cisplatin & Taxotere, 2 months scheduled, 1st & 2nd treatments finished
SCC Basaloid Features, BOT, T2M0N0 G3/3
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | Hi jimorpam
Sorry your husband is having to deal with all this.
If you look under CURRENTLY IN TREATMENT and read through the post "Constant Nausea" - ChristineB and others have written some advice on slowing down the feeds that may help.
I know that from my own experience, I did suffer from diarrhea and slowing down the Ensure feeds made alot of difference.
(I'm not sure how to put the link up to take you directly to it)
Hope this helps
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 |
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | Thanks Catherine for putting the link up
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | What about Boost Plus? It tastes good, but is it as healthy as Ensure?
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Is Boost Plus as good as Ensure Plus in regard to nutrition. Boost sure tastes better?
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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