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| | Joined: Jun 2009 Posts: 24 Member |  Member
Joined: Jun 2009 Posts: 24 | I told my docs that the mouth sores were "Like having a mouthful of bees." This has diminished over time. I hope yours does to. Like Gary said, you have the right to not suffer.
Dana, Male, Age 52, DX 11/08
SCC right tonsil, Stage 3. RND, tonsilectomy, and PEG install done collectively 12/26/08, Cisplatin x3, IMRT x35. Post-TX PET clear 9/09, PEG removed 9/09, PEG stoma surgical repair 9/17/09. Dx renal cell carcinoma 11/09. Partial nephrectomy 01/10.
| | | | | Joined: Jun 2009 Posts: 5 Member | | Member
Joined: Jun 2009 Posts: 5 | The fentanyl was the ticket for pain mgt - w/breakthrough meds to assist - it worked, but I'd add that coming off the fentanyl was a real mess. At the last 10 to 15 mcgs and lower, I couldn't sleep, couldn't get comfortable, legs jumping/twitching and lots of up/down to bathroom to urinate - all night long every 30 minutes - for 3-5 weeks. Coming off that was one of the worst treatment outcomes. ...However, given the rough course and what pain I experienced, I can't imagine not having it when I needed it... those 3-5 weeks of withdrawal were probably worth the 3-4 months of pain management. | | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Hi Sweetpea.
Martin also had thrush post tx with mouth ulcers. They prescribed something for the trush and some gelKam (not sure of the spelling) for his ulcers.
I hope you feel better soon.
C
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
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