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#9731 02-24-2007 09:35 AM
Joined: Mar 2006
Posts: 90
Kim S. Offline OP
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Mar 2006
Posts: 90
Many of you, like myself have been reading John and Amy's story in A Caretaker's Journal. Many times throughout the past year when my family was struggling to make some sense out of this terrible disease I would turn to Amy's journal and reread her past inspirational posts and follow the current happenings in their journey. As many of you already know John lost his battle with this terrible disease this past week. I wanted to post a special tribute to John and Amy, may your love story continue forever. What special people you are....you have touched so many lives through your postings on this board. We will continue to keep you and your family in our prayers. Kim


Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014
#9732 02-24-2007 01:09 PM
Joined: Mar 2006
Posts: 90
Kim S. Offline OP
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Mar 2006
Posts: 90
Just bringing this back to the top..........


Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014
#9733 02-24-2007 05:57 PM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
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Posts: 735
Amy ,


You and your family are in my thoughts and prayers, you have been here and helped so many of us live through this , you truley are an amazing women and i can only hope that you can find peace and comfort. from the bottom of my heart I am sorry for what this disease has done to you and your family .


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#9734 02-24-2007 06:10 PM
Joined: Apr 2006
Posts: 794
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Joined: Apr 2006
Posts: 794
Amy, you and John will be in my prayers as you deal with the final chapter of his journey. You both have served as beacons to the rest of us as you stayed strong and loving through the toughest road anyone will ever have to travel. My heart goes out to you.


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#9735 02-25-2007 03:51 AM
Joined: Nov 2006
Posts: 166
Senior Member (100+ posts)
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Posts: 166
Amy, I am sorry to hear this and I pray the the Lord will help and guide you through this and ease the pain.


Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 smile
#9736 02-25-2007 04:48 AM
Joined: Jan 2005
Posts: 156
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Posts: 156
may god bless you amy,and prayers an hugs sent your way


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