#41525 07-25-2007 12:05 PM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I went to the dentist to get a cleaning and flouride trays made. Since my cancer is in my cheek and roof of my mouth, Im in a great deal of pain. My dentist has given me what I consider a miracle. He gave me something he calls magic mouthwash. It's made of 30% benadryl, 30% mylanta, and 30% Lidocaine. After trying it my mouth instantly felt relief. Has anyone else heard of this or used it? If not I hope you will ask your doctor to give you a prescription for it.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
#41526 07-25-2007 12:24 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | It is a common concoction at treatment facilities around the country with small variations in formulation. During the worst of the mucocitis sores it is a life saver. Lidocaine is the injectable anesthetic commonly used in dental offices when you get a tooth filled.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#41527 07-25-2007 12:49 PM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Hi Christine,
My fathers cancer was also in the roof of his mouth. Lidocaine was a lifesaver for him pre surgery. It provided him enough relief to be able to eat and speak. His was straight, not mixed with anything. He swabbed it on the affected areas. In some ways it provided more relief than the narcotic pain relievers and the relief was instant. He started out by using Orajel and when he realized how helpful that was he asked his doctor if there was something similar available via prescription.
I'm glad you have found something that provides some relief.
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#41528 07-25-2007 10:06 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | There's variations on it. Mine had lidocaine, morphine and benedryl.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#41529 07-26-2007 09:32 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Mine was similar and it was very helpful in reducing the pain in eating. My Oncoligy doctor prescribed.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#41530 07-26-2007 10:30 AM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I wish I had known about this earlier. My dentist wouldnt even do any work because I hurt so bad I couldnt open my mouth for him. Now tomorrow, my fouride trays will be made. I have been thru severe pain ever since I had my biopsy a few weeks ago. This has been such a relief not to hurt so much, all I kept thinking was that its going to get alot worse too.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 104 | I'm sure others have tried viscous lidocaine? John was given an rx for it and he tried it optimistically three times w/absolutely no results--very disappointing! He's just using gobs of Orajel to what is the worst area so far, the right side of his tongue, although the throat is catching up fast. Norco helps some, but he's just completed week three and by all accounts here things are only going to get worse in terms of pain.
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Yes, it so frustrating how what works wonders for some, does nothing for others. Like John, I was so excited about getting the "Magic Mouthwash" - which quickly turned to big time disappointment as it made me vomit each and every time I used it. It seemed so wasteful to throw out that big bottle back in 07, made even worse when they tried a new formulation of magic mouthwash with just the lidocaine and benadryl, still unable to tolerate it. So I had to throw 2 big bottles out in the end.
Meanwhile, almost all the other patients in the waiting room for radiation had tremendous results with the magic mouthwash. go figure
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | What I have been on forever has 3 narcotics in it too. It kills the pain for awhile and lets em get to sleep.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 104 | what three narcotics would those be?
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
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