#9719     02-23-2007 02:32 AM      |       Joined:  Jan 2007  Posts: 3    Member   |      OP      Member    Joined:  Jan 2007  Posts: 3  |    I'm nearly five weeks done with six weeks of treatment, and am hanging on although some days I am not sure why or how. I was wondering if anyone had found portable suction machines useful in helping get rid of the mucositis junk. I keep choking on the stuff and I think it might kill me if this treatment doesn't. One of my nurses gave me the number of a medical supply outfit that rents these machines, but if they're not really helpful I don't want to bother. Any comments from those who've used them?
  thanks- Mary      |      |       |                      
#9720     02-23-2007 03:24 AM      |       Joined:  Feb 2005  Posts: 2,019    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Feb 2005  Posts: 2,019  |    Mary, Several people here have definitely found them useful. I personally didn't find them all that helpful because the suction, in order to be strong enough to get the gunk out, ended up hurting my cheeks/gums--which were incredibly sore and sensitive.  So I just kept spitting all the time. Still, as I said, I may be the exception since I know other people found they helped.
  Nelie        
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia.  "When you're going through hell, keep going"
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#9721     02-23-2007 04:00 AM      |       Joined:  Sep 2002  Posts: 642    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Sep 2002  Posts: 642  |    Mary, I found the device very helpful. I kept it by my bed at night and by my easy chair during the day. Constantly spitting into a tissue can cause irritation around your mouth. It is much easier just to put the suction device into your mouth, like at the dentist. I was very glad to have the Yankauer device and I heartily recommend it.
  Best of luck,
  Danny G.        
Stage IV Base of Tongue SCC Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#9722     02-23-2007 06:32 AM      |       Joined:  May 2002  Posts: 2,152    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  May 2002  Posts: 2,152  |    I didn't have one when I had radiation but sure wish I had. The Yankauer device would have been perfect. I have one now for my trach. Rental is covered by insurance and runs somewhere between $24 to $40 a month. For that price, it is worth a try, even if insurance doesn't cover it.
  Take care, Eileen        
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad  Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer  June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I     
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