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Pat_451 #97169 06-11-2009 08:54 PM
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Pat,
Many of the people here have complained that thier PEG tube gets clogged easily. If you look at the tube its self there is a number that has an "F" behind it. Mine is 20F. The F means French. Which is some form of measurement. I can put anything in there, it's never clogged.
The doc. that put it in told me that I could just use Boost. Long story short, Boost made me sick as all get out, and afraid to leave the house. I now use Jevity 1.5, as soon as I switched the diahrea cleared up. This doctor also told me that people that have them for a long time will just blend the family meal with water and feed themselves that.
I have been on the PEG for 8 months. I have juiced veggies lately but have stopped short of blending meatloaf. A quick side note: carrot juice will stain your PEG.
If your doctor says don't do it then you probably shouldn't but if you ask one of the other doctors they will might say go ahead and blend away. But your suppose to stay away from raw veggies while on chemo.
Amy


40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
AmyK #97178 06-12-2009 05:44 AM
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Yes. As I have posted before, a PEG is where SIZE MATTERS.
My first defective peg was only a 12 FR, and after much complaining they replaced it with a 14 FR. A 20 FR is the gold standard but because of complications from the first botched PEG, too risky to put in at that time. If I am still stuck with PEG, my next one will definitely be a 20FR with a "mickey insert" just like the infamous U tube video.
The Jevity 1.5 cans come with a warning that the minimum size PEG is a 12FR. My doctors gave the same warning that nothing can be put into the PEG except Jevity, water and wine until I get a 20 FR or else it will clog (Pegs come in 10, 12, 14 and 20 FR mostly). Luckily, the constipation effects of the pain pills and patches balances out the diarrhea effects of the Jevity 1.5


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #97185 06-12-2009 08:35 AM
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i bought some liquid ensure that john never drank (this was after his surgery). can this go in the PEG? he just got his put in two days ago.


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
mgmichael #97192 06-12-2009 10:51 AM
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Our Medical Onocologist told us we could use ensure.
Pat


Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
Pat_451 #97207 06-12-2009 02:34 PM
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Posts: 225
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Martin's PEG only clogge once and when it unclogged I sprayed liquid all over martin and the bedroom wall. I think this is the only time he laughed during the whole of TX.
The trick we found was to flush 2 seringes of water before feeding and 2 after. It seems to flush stuff out and clean it.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
Cecilia #97212 06-12-2009 03:40 PM
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So if/when a PEG clogs, how does one unclog it?


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
mgmichael #97227 06-12-2009 05:19 PM
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Flush it with warm water. At least thats what I was told for mine. I never had it clog up. I was also told to flush it weekly with ginger ale.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
mgmichael #97233 06-12-2009 05:25 PM
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Depends where the clog is. If it is near the outer end it is easy. You could even use a small wire. Alternatively use the syringe and water apply pressure (gentle) and suction. This always worked for me.
(I managed to clog mine quite few times, mainly with vegetables that were not blended or cooked enough)

If the clog is at the other end and the syringe trick does not work then wait a bit the stomach juices may just digest the clog.

M




Last edited by Markus; 06-12-2009 05:29 PM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #97248 06-12-2009 07:18 PM
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We had to flush ours out with coke.
Pat


Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
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