#96963 06-08-2009 05:56 AM | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | Last week was the toughest week by far. O wound up getting 5 IV's tp keep me from dehydrating, had PEG tube put in and no energy. Things stabikized over the weekend and am feeling pretty good. It just so happened my bro-in-law was diagnosed last weeek with cancer of the escopogus and will have surgery today.
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I think everyone should get a port and receive daily fluids from the 3rd week of rad thru the 3rd week post Tx. I think it should be standard all over the world.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Irish:
We're on the same schedule...11 days, but I have chemo weekly (carboplatin). Hang in there!!! During chemo, I was always given 2 IV bags of fluid with my Cisplatin. You need this to protect your kidneys.
Take lots of naps. Don't worry about exercising as yet. Remember to practice swallowing no matter how difficult it is now as it will prevent problems later. If you still have salty taste buds try spagetti noodles with butter and salt. If water doesn't taste good, try Vitamin water; vitamins and little sugar.
Good Luck. Most important of all. KEEP A POSITIVE ATTITUDE. It really makes a difference!!!!! It'll soon be over, and we can heal and enjoy the remaining of the summer.
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2009 Posts: 75 | Hi:
You and my dad started treatment around the same time. He too has been dehydraded and had to be hospitilized several times. Are you throwing up a lot? My father seems fine until he gets his ensures via feeding tube and then he gets sick. How are you doing? I will pray for your recovery. Take care.
Chris
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | | Joined: Jun 2009 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 64 | My husband has i think 9 days left on his radiation. I think he has three of the chemo's left. They had to take him off Cisplasitin because it about destroyed his kidney's. They are using Taxol and then the sister drug to Cisplastin. He seems to be doing ok with that. He is just sick. We started to use his peg tube this week full time. He has lost about 25 pounds and finally will let me use it. We are up to three cans now, I have to dilute the solution and run it is slow and use warm water that seems to best solution for him. The 25th of June is our offical last day of radiation.
Looking foward not driving so much each day for treatments.
Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
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