#96516 06-02-2009 10:27 AM | Joined: May 2009 Posts: 5 Member | OP Member Joined: May 2009 Posts: 5 | dear all - perhaps this forum would be the more appropriate place to post this query. grateful for your feedback please... ++++++++++++++++
Dear All,
This is my fist post and would beg your indulgence if am not doing this right.
My dad just had his second surgery for the removal of a tumor which is deemed a recurrence from an earlier wide resection of a floor of the mouth CA ( june2007)
This recent procedure , done some 4 weeks back, removed some 11cm of his mandible and the area around it. A titanium plate was installed and a pectoral flap was made for reconstruction.
So far, healing seems OK (despite chemo / rad of the area some 18 months back). My concern , however, is that he still CANT swallow - not even his saliva. The surgeons say that they have have kept the tongue intact and the nerves as well. Thus they see no reason why dad shoudnt be able to "re-learn" his swallowing faculties. BTW, he can move his tongue up and down, sideways a bit but can fully extend it outwards. also noted a bit of a tongue slant towards the resected area of the mouth. His speech is garbled but some words are recognizable.
Due to his inability to swallow, he was on an NGT till this morning when a PEG was finally inserted as feeding replacement to ease the irritation of the NGT. Speech/Tonge Therapy sessions are due to start next week.
Am here seeking your views, experiences and suggestions on this worrying issue. Is this non-ability to swallow normal? if not, cant it still be regained? how long will the rehab take?
grateful for your help -
Mundace
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Not being able to swallow after surgery is normal. I had my tongue surgery back in February and they tell me I will be lucky to learn how to swallow again by Christmas. My story is complicated by having to get even more radiation and chemo (last TX tomorrow ! )so that has set me back. The key is to have your father get SPEECH AND SWALLOWING THERAPY. I finished off 20 sessions and will be taking another 20 once my throat calms down from this radiation and I get the all clear from my surgeon, So while it is a hassle, it does not mean anything too bad. Some people have no problems with swallowing. I had no problems the first time I went through this, it was relatively easy, and I did not even use a feeding tube, Different story the second time around. since this is your fathers second time, just be patient and make sure he gets the therapy, Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | When I came to after surgery at Ohio State, the 1st thing that came to mind was to force myself to swallow. I had been told that I wouln't be able to do this before surgery. By the time the nurse ame with meds, I felt confident and asked her to let me swallow them, She said that was impossible. I asked her to let me try. She did and I swallowed them with water. Dribbled a little but they went down. It's a force yourself thing.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2009 Posts: 5 Member | OP Member Joined: May 2009 Posts: 5 | thanks charm for the reply - hope things go well on your end too. best regards | | | | Joined: May 2009 Posts: 5 Member | OP Member Joined: May 2009 Posts: 5 | thanks EZ jim - appreciate the help. best regards | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | If I remember right BarbT was standing there too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
Forums23 Topics18,249 Posts197,141 Members13,326 | Most Online1,788 Jan 23rd, 2025 | | | |