| | Joined: Dec 2007 Posts: 46 "OCF Down Under" Contributing Member (25+ posts) |  "OCF Down Under" Contributing Member (25+ posts)
Joined: Dec 2007 Posts: 46 | HI! I too was not a fan of mash. Try using chop sticks...you can place the food at the back of your mouth (and yes still taste it!) Give it a go..it may work for you  Good lyck Lyn xxxx
Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good!
2016... Still cancer free! Yay.
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | I'm having speech problems too I noticed if I talk to fast my words roll together. I'm going to a Speech therapist today to see if they can help. I had my surgery April 21st 2009 it might be too early for my speech to come back. I was told it would give it time. My tongue feels double of size it's still swollen, the side of my face still feels numb but not like it was is this normal?
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Dianne...Christine and I will pick you up!! We may have to get a bus that is for sure!!!  Angelina...I am disgusted at what this "woman" said to you. It amazes me that someone could be so rude and ignorant. Do you have a phone number? I would settle for a phone call...lol Just kidding, I'm just sorry you have deal with that. Like you don't have enough going on. Keep your head high..you are a fighter and she is not, obviously. xoxo We got your back here:)
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Thanks. I do appreciate all of your support. I am so glad that I found this place. I realy do wish people would stop talking to me about the way I talk. Someone else said something today. Was not being mean, but mentioned that I was not talking as well today as I was yesterday. UGH! I am self-contious about it enough. I did not feel like a fighter today. I think reality has just set in. I did see my PCP yesterday and she recommended I go see a counselor/psychologist. I am not one to do that, but I bit the bullet and made an appointment with one.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Angelina,
It's ok to not feel like a fighter everyday. We all break down and that's important too. I went to a therapist 2 1/2 years after my diagnosis and it helped A LOT. I think you should give it go...if the first person isn't a good fit for you try someone else. I didn't like the first one I went to..there was no connection. When I did find my therapist, I cried for the entire hour of my first appointment:) It felt soooo good. I proud that you made the appointment. Keep us posted with how you are doing.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Angelina, have you been to a speech therapist? I went to one and they were very helpful. I do customer service over the phone so its very important that I am able to speak properly. Its worht a try even just to get evaluated.
Thats a good idea to see a therapist. Many people on here have gone to one and also taken anti depressants. Its nothing to be ashamed of, its a positive choice you are making. Good job!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2009 Posts: 17 Member | | Member
Joined: Jun 2009 Posts: 17 | Angelia, I agree with the others, first, every day can't be a "fighting" day, sometimes you need a day off from that. I also strongly agree with seeing a councelor, I would definitely look at that as a good move, they are there to help make you feel better about yourself and help you to understand yourself, I think they are a good tool to have and is definitely not a negative. I would use that to your full advantage! Good luck,best wishes.
Rachael- daughter 53 year old mom at stage IV oral in jaw bone and has mestasized though lymph nodes, shoulders and spine..... more details to come.
mom now 55 and has metastized to chest and liver, has stopped all treatments and meds 7/12/11
**let good prevail over evil**
| | |
| Forums23 Topics18,210 Posts197,045 Members13,232 | | Most Online614
Jul 29th, 2024 | | |
|
